By Isabella Hornick and Joseph Lasky, MD
Given the rarity of pulmonary fibrosis, pulmonologists are constantly seeking to know more about the disease and advance research on treatment options.
Two valuable resources for this research come from the Pulmonary Fibrosis Foundation (PFF) through its Patient Registry and Community Registry, the latter of which just celebrated its 1-year anniversary.
Read the full story in Healio.
Black patients with pulmonary fibrosis (PF) consistently experienced poor outcomes associated with their disease at earlier ages than other groups, including hospitalization and death, according to U.S. registry data spanning nearly two decades.
In an analysis from the Pulmonary Fibrosis Foundation Registry (PFFR) from 2003 to 2021, a PF diagnosis in Black individuals occurred about 10 years earlier, on average, before their white and Hispanic counterparts (P<0.001), reported Ayodeji Adegunsoye, MD, MS, of the University of Chicago Department of Medicine, and colleagues.
Read the full story in MedPage Today.