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Supporting Strong Mental Health: Managing Chronic Conditions (Parts 1-3)

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“For the more than 60% of Americans with chronic disease, staying mentally and physically healthy during COVID-19 has been a challenge – especially for the kidney and transplant community. The National Kidney Foundation’s Kelli Collins, advocate and patient Valen Keefer and Paul Gionfriddo, CEO of Mental Health America share their insights and resources to help others with chronic disease focus on mental health.”

Watch all three parts of the series, here.

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3 Toddler Siblings with Rare Heart Condition Receive Life-Saving Transplants

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“Sara Siqueiros tells PEOPLE that the last two years for her and her husband Jason Sr. have been a complete whirlwind ever since their kids — daughter Isabel, 4, and twin sons, Jaxon and Jason, 2 — were all diagnosed with restrictive cardiomyopathy.

“I want them to grow up being thankful that their hearts beat for two and to never forget that,” Sara Siqueiros tells PEOPLE of her daughter and twin sons.”

Read the full story, here.

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When you are ready to contact your donor family

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Just like there is no “right” way to grieve the loss of a loved one, or even to fall in love, the decision to reach out to the family of your donor is a very personal decision. Perhaps you have just begun to think about it, or perhaps you have been thinking about it for awhile, whenever you are ready there are resources that can help you with this process. Here is a link to helpful information

Contacting my donor family

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Spatial Designer Anthony Bright Launches VR Experience to Find Kidney Donors

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“Atlanta-based digital and virtual designer, Anthony Bright, just launched a virtual reality experience called “A Bright Future.” With this immersive project, Bright aims to find suitable transplant candidates after he was diagnosed with kidney disease back in November 2019. The multimedia effort also acts as a precedent for future recipients who are looking for potential donors.”

Read the full article, here.

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The reason I qualify for a Covid-19 vaccine has nothing to do with the fact that I’m immunocompromised. That needs to change

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“My cell phone rang on a Sunday afternoon in early March and I answered it immediately. It was my friend, a doctor who specializes in epidemiology and infectious diseases. She warned me that the coronavirus was about to surge in New York City and recommended that if I could flee the city and retreat to my parents’ house, I should do it, and fast.

I hung up the phone, called my parents, rented a car, packed my bags and drove 13 hours from New York City to the suburbs of Chicago the next morning. Meanwhile, my friends were still going out to dinner and going into work. I could tell my coworkers and roommate thought I was being absurd, but I couldn’t afford to care about their opinions. I had simply fought too hard for all 27 years of my life, I couldn’t lose it here.”

Read the full piece, here.

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Study examines social determinants of disparities in kidney transplantation

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“Among US adults with kidney failure, race and social determinants of health were associated with patients’ likelihood of receiving a kidney transplant. The findings come from an analysis that will appear in an upcoming issue of CJASN.

Blacks are more likely than whites to develop kidney failure, but they’re less likely to undergo kidney transplantation, the optimal treatment for kidney failure. Blacks also have disproportionately lower rates of kidney transplants from living donors, which offer superior patient and transplant survival rates compared with deceased-donor kidney transplants.”

Read the full article, here.

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COVID-19 after kidney transplantation: Early outcome and renal function following antiviral treatment

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Highlights

  • During COVID-19, organ transplant recipients develop all forms of the disease
  • This Romanian centre has higher prevalence but similar outcome with other European centres
  • Mild and moderate COVID-19 has excellent patient and graft short-term outcome
  • Targeted antiviral therapies do not seem to impair kidney graft function

Download the full paper, here.

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