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(Opinion) Missy Franklin: No one should die waiting for a lifesaving organ transplant

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As the world continues to battle with a staggering pandemic that understandably has captured nearly every aspect of medical news, millions of people fight battles as before with major illnesses like cancer and heart disease. Among the many Americans currently suffering from potentially fatal medical conditions are those waiting for kidney, liver, or other organ transplants.

My dad Dick and aunt (and godmother) Deb are two of them. My family suffers from Polycystic Kidney Disease or PKD, a genetic disorder that reduces kidney function. Nearly half of those with PKD have kidney failure by age 60, and my father and aunt are in end-stage renal failure now. They are on the transplant list awaiting new kidneys. Read more.

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Act of kindness: Former college roommate to donate part of his liver to save his friend

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The college roommates had not seen each other in 21 years. But when Steven Robinson realized on a family trip to Detroit that he was within driving distance of Richard Koonce, he called his friend to ask if he could visit. 

Koonce had introduced Robinson to his wife, Natalie, when they all attended Norfolk State University, a historically Black college in Virginia. When his old friend reached out he welcomed the couple and their three children to his home in Sandusky, Ohio, last summer.
Read the full story.

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On National Donor Day, organ recipient breaks down misinformation

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On New Year’s Day, USC junior Selah Kitchiner floated down Colorado Boulevard on a conveyance both dazzling and ephemeral. The purple and gold 2022 Donate Life Rose Parade float was covered in roses, sunflowers and seaweed with Venetian columns and arches that rose two stories. Kitchiner was just above street level, posing as a gondolier, oar in hand. No rowing was required, though she did plenty of waving during her hour-long Rose Parade ride.

“I waved to anybody with a USC chair or sweatshirt, anybody who made eye contact,” Kitchiner said. “If a spectator was daydreaming and they saw me wave at them, they would kind of snap out of it.” Read the full story.

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What Evidence Do We Need to Move Forward With COVID Boosters?

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“More data and an evaluation of several factors at home and abroad are key.

On Monday, employees of Pfizer met with high level executives in the Biden administration to discuss the role of boosters — a.k.a. a third vaccination with an mRNA vaccine for SARS-CoV-2. Some have speculated that, as with the first two doses, the emergency use authorization pathway will again be used to market boosters. With the rise of the Delta variant and others, enthusiasm in the media and the Twitter commentariat for boosters is growing. However, there are certain criteria that must be met before we jump on the booster bandwagon. Some of these criteria apply at home, and others apply abroad.”

Learn more, here.

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Young Race Car Driver Raises Awareness About Life-Saving Transplants

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Jeannine Williams saw the writing on the wall. It had been nearly 30 years since a hepatitis infection resulted in the need for a liver transplant at age 22. Decades of taking the immunosuppressive drugs required post-transplant had enabled Jeannine to live a full life, giving birth to two children even though doctors had originally predicted she’d survive just five years.

But those same life-saving drugs had taken a toll. In the years since receiving a new liver, Jeannine, 54, had vanquished breast cancer and multiple skin cancers, brought on because her immune system was suppressed. Then in 2018 came the unwelcome news she’d been expecting: Jeannine, from Oakley, California, needed a kidney transplant.

Read Clayton’s and Jeannine’s full story, here.

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They Survived COVID. Now They Need New Lungs.

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“BOSTON — He survived Covid-19, but his lungs were ravaged. After months of deep sedation, he is delirious, his muscles atrophied. And this 61-year-old still cannot breathe on his own.

He was first intubated just after the winter holidays. Now, when he fully wakes, he will see that he is still attached to the ventilator by a tracheostomy tube in his neck. Slowly, he will come to learn that catheters the size of garden hoses are connecting his body to another device, a large extracorporeal membrane oxygenation machine that has taken over the work of his failed lungs.

Gently, his doctors and family will tell him that his lungs are never going to recover, and that this machine is a bridge that will help keep him alive until he can receive a transplant. If it turns out that he is not a transplant candidate — if he cannot build up enough strength, or if he develops a catastrophic new infection or organ failure — the machine will eventually be turned off. And he will die.

He is not alone. Here in my hospital, we are caring for a new population of patients who have cleared the virus but are left with severe lung disease, trapped on ventilators and lung bypass machines.”

Read the full piece, here.

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The ‘Heart’ of the Matter is That an Organ Donation Saved Sam Dey’s Life

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In 2009, Sam Dey was working for General Motors and in India on business.

It was during that business trip that Sam started falling.

“I was collapsing and falling in these incredibly crowded streets of India,” says Sam. “I was falling everywhere, and people were always pouring water on my face to revive me.”

Doctors in India told Sam—who had congestive heart failure and type 2 diabetes—that his badly damaged heart would prevent him from returning to the United States.

Sam ended up being stranded in India from 2009 until 2014.

Read Sam’s full story, here.

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After Two Kidney Transplants, Tiffany Archibald is On Top of Her Game More Than Ever

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If you play basketball for a prestigious program like the University of Southern California (USC) or professionally in China and Europe, it’s a pretty good bet you are an athlete at the top of your game.

Chronic kidney disease (CKD) is just not something that should rear its ugly head if your life is about proper nutrition, consistent exercise, and high-level competition.

Right?

Tiffany Archibald would beg to differ.

Read Tiffany’s full story, here.

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Managing Anxiety as a Transplant Patient in a COVID-19 World

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Transplant recipients never needed a COVID-19 pandemic to be anxious about infections.

Long before the pandemic, living with a transplanted organ had its own caution, stress, and anxiety about illness.

Throw social isolation into the mix and your anxiety is only made worse.

Social Distancing’s Impact on Transplant Recipients Mental Health

Isabel Stenzel Byrnes has lived 16 years with a double-lung transplant. Byrnes is a licensed social worker and grief counselor from California who says she started to feel the effects of social isolation about two months into the pandemic.

“I was starting to really find myself in a slump, and missing the energy shared with human beings,” said Byrnes, who copes by taking socially distanced walks with people.

One positive aspect of life during COVID-19 is that today we have computers, tablets, and Smartphones, which can be useful resources to visually and auditorily connect transplant recipients with their doctors, nurses, psychiatrists, social workers, colleagues, and friends.

Read the full article, here.

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