Medicare cut puts SC transplants at risk: Vital monitoring tool lost

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By Zharia Jeffries

Earlier this month, U.S. state representatives and senators rallied on Capitol Hill advocating for the reinstatement of Medicare coverage for vital blood tests crucial in the post-transplant journey.

“I initially had planned to be a part of that group until I got sick,” said Margaret Gamble, a former South Carolina state representative. Read the article in The Post and Courier.

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New round of taking on Goliath by protesting a Medicare denial

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A Washington day of advocacy to call for restored coverage of special blood test

By Samuel Kirton

I’ve been involved in equity issues for most of my adult life and have been an advocate for the rare disease community for decades. In the biblical story of David and Goliath in 1 Samuel 17, David had no intention of shying away from Goliath. Neither do I.

Goliath fooled me once this year, but he wouldn’t this time. Read the article in Pulmonary Fibrosis News.

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SARS-CoV-2 Vaccination in Adolescent Solid Organ Transplant Recipients

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By Victoria Socha

Results of previous analyses have demonstrated that adolescent solid organ transplant recipients who receive three doses of SARS-CoV-2 mRNA vaccine experience high seroconversion rates and antibody persistence for up to 3 months. There are few data available on the long-term antibody durability in that patient population. Read the article in DocWire News.

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